Thankful Thursday

I have decided that we will try to at least blog on Thursdays about something we are thankful for.

Mandie:

I am thankful for my hubby as we take turns getting up with Courtney in the morning. There are days that I would love just to sleep for another hour. I am thankful for my parents not sure what I would do with out them and I am thankful for my girls. Even though at times they drive me crazy I don't know what I would do with out them..

Courtney:

She says she is thankful for her big bed, we got her a queen sized bed yesterday she was sleeping in a twin bed and the way she moves around and sleeps it was time.


On a side note I think she may be getting a sinus infection or her sinus's are just messing with her. Which I think may be the case since we have had a weird winter and I have been having sinus issues. So when we go into Clinic in a few weeks I will see if we can't get her into the ENT her dr would like her to see.

 

parenting

“Don’t handicap your children by making their lives easy.”
-Robert A. Heinlein

“If you want children to keep their feet on the ground, put some responsibility on their shoulders.”
- Abigail Van Buren

“The voice of parents is the voice of gods, for to their children they are heaven’s lieutenants.”
- Shakespeare

Children desperately need to know – and to hear in ways they understand and remember – that they're loved and valued by mom and dad – Paul Smally

These last few weeks have been hell on me, not only do we have Courtney with her CF but we also have my oldest DeziRae who is ADHD along with some other issues that we are trying to figure out. 

We have all heard the pharse when you have kids they are going to be twice as bad as you were right? Well, I know I gave my mom a hard time when I was a teenager but come on I didn't thing I would be dealing with it with a 10 year old not at least until she was a teenager. 

We have DeziRae in counseling and honestly it isn't helping and it won't help until she honestly opens up and tells her counselor whats really on her mind as of right now she tells her what she wants to hear because she doesn't like letting anyone down. She is just like this at school also but when she is home she is a whole different child. Both the girls have rules but Dezi is just down right disrespectful to Eric and I, her sister and even my mom at times. I started this blog to keep family and friends updated but also so I could vent but as I am sitting here typing this I am not sure if I can go any further because I don't want to be judged. So until I am more comfortable with letting out whats really going on I have one question. If you have a child that has a anger problem how do you handle it? All I will say is that Dezi is a very angry 10 year old child. She won't open up to us and I don't know how much more I can take. I am lost I feel alone but most of all I FEEL LIKE I HAVE FAILED AS A PARENT TO HER.

UHHHH

I think Courtney has some kind of bug on Friday so I kept her home due to some tummy issues. She seemed OK for the most part just in the bathroom a lot. Saturday morning she woke me up around 5:45 A.M. cause she has a accident so she gets in the shower why I strip her bed. She takes her temperature and its 100.4 that's high for Courtney her normal is around 97.8 so she rested on the couch this weekend the weird thing is that she has had a headache all weekend. On a side this weekend has been hard on me not just because my baby girl was sick we lost 2 cfers one on Saturday and one today. They both were in there 20's. I didn't personally know them but still it hurts and it hits home. I am having a really hard time with this disease . It just shows us that is will rob us of our loved ones that are dealing with CF when ever it wants to. I just ask that we keep both these families in our prayers. Just give your kiddo's and other loved ones a extra hug and kiss. I know I sure did tonight.

November 2nd-6th thankful

Courtney has been asking me when we were going to update the blog on the things we are thankful for so I am taking it as this is something she really wants to do and now this mommy feels bad because I haven't made the time. So here is are list.

Courtney November 2nd-6th

I am thankful for books as I love to read

I am thankful for school because I enjoy and love to learn.

I am thankful for being able to sing

I am thankful for being able to eat dinner with my Grandma, Poppop, sister and Mommy on Saturday night.

I am thankful that my Poppop went church with us today.

DeziRae November 2nd-6th

I am thankful for my best friends and friends
I am thankful for my family as they are always there for me
I am thankful for our dogs
I am thankful for our world
I am thankful for my Grandma and Poppop because I love them and got to spend time with them this evening

Eric November 2nd-6th
I am thankful for Gods Grace
I am thankful for My family
I am thankful for the blood shed for my sins
I am thankful for - well since he is at work at a meeting I am not able to complete the last two days for Eric.
I am thankful for -


Mandie November 2nd-6th

I am thankful for all my CF family because I am able to vent and or talk to them and they know what I am going through.

I am thankful for my wonderful hubby I am not always the easiest person to live with and not always the nicest person at times and he is always there at the end of the day and loves me no matter what.


I am thankful for God and the relationship that I have with him.

I am thankful for my family even though we don't all get along I still love them no matter what.


I am thankful that it's the girls bedtime and they are in bed as it has been a long day with time falling back a hour it seemed to take for ever for bedtime to get here.


What are you thankful for?


Love,
The Catron family

My little witch and Soccer Coach

I got this idea from a friend on Face Book Since its november I am going to have the family post something that they are thankful for.

 Courtney-

 I am thankful for doing better today on my throat culture.

DeziRae- I am thankful for Jesus

Eric-I am thankful for Salvation

Mandie-

Having such great parents that are always there for me and can bring me back up when I am down

November 1st Clinic

What a day it has been, Courtney’s clinic appointment went OK could have been worse but could have been better.

She gained weight she is now 50lbs I NEVER though she would get there she grew a half a inch so there for her bmi went down. If she gains 2lbs by January she will get 1 $10.00 gift card to Walmart if she can gains 5lbs by January she gets 2 $10.00 gift cards to Walmart . Throat culture was OK today it took 4 people to hold her down, one day she will just let them do it with out a fight or even better she will be able to spit stuff up. We are going from Zenpep 10’s to 15’s to see if that helps with her gas. Her PFTs were down a little bit and I think that is because we didn’t do treatment this morning but there was no way I was going to get her up at 5 this morning when I knew she was going to be going to school after her visit, but one of her other numbers were up .

We are going from Albuterol to Xopenex going from Nasonex to Nasacort to see if that helps since they other one seems to give her bloody noses when she does it. We are going to let her stay up later to see if she falls asleep faster since I can put her to bed at 8:00 and she won’t go to sleep until 9ish or later.

I had also asked the Dr. about two meds that could be used with the arrow neb and needless to say I about got my head bit of and pretty much got made to feel like a crappy parent. She basically told me to not get them and that CT scans don’t really help with a CF patients sinus and that she basically only likes one ENT due to them doing 3d images. OK I understand that but do you want to make the 3 hour round trip and pay for my gas for Courtney to go see this ENT ? The ENT Courtney see’s now also has other CF patients so right now I am in a tight spot. I don’t want my daughter to have to have another sinus surgery but if she needs it then yes but the Dr . is basically telling me that when she needs it she will let me know. She is a control freak at times. I just want what’s best for my daughter

It's that time of year again

Her outfit that she picked out for picture day.

Trying to scare me I love this pic

Being cheesy after treatment tonight

Sisters and best friends for life

not real sure

My baby girl

Courtney and Grandma on 9-14-11

Courtney interviewing everyone

Just Courtney

Yeap I am really starting to dislike September through late March. Courtney had to go in last month for another CT scan of her sinus's. CT scan didn't look as bad as her first one back in December but it wasn't all that great either. So her ENT doctor put her on 6 weeks of Omnicef and three weeks of prednisone 1st week she 20 mgs 2nd week she takes 10 mgs and the 3rd week she is on 5 mgs. So this shall be fun since this is the first time EVER that she has been on them longer than 3 days. She also goes for a CF check up next month so we will see what her CF doctor has to say about her being on the meds she probably won't be happy because she wasn't the one to put Courtney on them, she doesn't like that we see a local ENT rather then the one in Fort Wayne that she rather Courtney go and see. I like our local ENT she deals with other CF patients also so she knows her stuff and heck it is less than a 5 minute drive for us and Courtney doesn't have to miss school. So all in all I am hoping that she gains some weight so maybe just maybe the doctor won't complain to much. I am really thinking about taking her to Riley but I don't know, I want her to get the best care possible and at times I feel like she isn't. Yes I understand that she also has asthma so OK lets do something about it. Also her CF doctors knows that  diabetes runs on Eric's side of the family and you would think since once a year her levels are kinda high for her that they would at least draw twice a year and then she has us add a iron pill along with her vitiams and I thought it was because her iron was low nope it has to do with her blood count. I had to ask why and then I was a little upset because my mom is dealing with the same thing right now so you would think they would talk to me more about it or even want to re draw and see where her numbers are now.

Well, good thing Courtney is on a antibiotic because Eric is sick and I thing I am starting to get it. She is coughing more so we have upped her albuterol treatment and vest she goes to bed at night and that's when she really starts coughing. I just wish she would learn to cough it all up but I know in time she will. I know part of it is probably due to allergies but she doesn't really get effected by them. 

On a good note she is loving school and is in the highest group for her spelling words I was told she tested higher than the other two that are in her spelling group. She got a 100% on her math test. I am so proud of her but she has her standards set so high for her self.