Wow it's been a long day.... Courtney had her CF clinic today plus the whole nine yards that go with it. Anyone that knows Courtney knows that she fights with everything blood draws throat cultures...
...................BIG NEWS............
She has being telling me that she was going to be a BIG girls at the doctors. When they came in to do blood draws she said she was going to sit there and I was thinking yea right well she sat there and I didn't hear any screaming or crying so I thought the didn't start yet until Eric looked at me and told me the needle was in. YES I am a proud mama she sat there and didn't flinch nor say a word about blood draws so she got $1.00 for that yes I told her the other day if she didn't throw a fit I would give it to her. Well then came throat culture she threw a fit but that's OK wasn't as bad as other times. We will keep working on that one. I will take 1 of 2....
Well, Courtney has grown a little bit but has lost almost a pound. Her height is 112 cm and weight is 41 lbs. She sounds clear just has some drainage so if she doesn't sound better by Friday I am to call them and then most likely they will call in a antibiotic. Had two x-rays done one for the chest the other for her tummy as she goes poops 2-3 times a day she is real gassy and can run you out of a room. So her Miralax is 1 capful daily. We also have to work on her sleeping issues this shall be fun.
She also has two loose teeth well on the way home she finally pulled it.
Thank goodness it's Friday.... Don't get me wrong I love the weekend but more than anything I am happy it's Friday because that means it's almost time for clinic. I don't usually get so happy about going to them but my last post stated that Courtney was getting the sniffles well guess what it has turned into a cough with a runny nose. Again I would love to say it's allergies and I am hoping that I am right. We have a busy week ahead of us. I leave next Sunday morning to go to Arizona with my mom and dad for my nephews graduation. The girls will be home with Eric and I know he is able to care for them but I am the mommy that doesn't like to leave her children and am the kind of mommy that has to be in CONTROL all the time. I have faith that almost everything will get done and I know that it's not always going to be done my way but as long as things get done I should be happy right?
We took this year off from Great Strides I know that's bad of me but it didn't help that we don't have many walkers in our town and that our walk got cancelled because of all this. I feel bad but I have this feeling with taking time off will give me more ENERGY to focus on next years walk.
Mandie ~
Well well well, Courtney seems to have the sniffles yet again I am thinking some of it's allergies since she isn't coughing let's keep those fingers crossed. Courtney has her birthday check up , really why do they call it that? I call it her yearly CF appointment next Wednesday so lets hope all is well then. I have tons of questions this time around I want to know what her vest settings should be set at these days since she doesn't cough at all during her treatments unless she is sick. I mean her base line is no cough but then again that changes too.
Tonight as she was getting ready to do treatment I was getting everything ready and I was going over what she had to do and when like I always do even though she knows what order they go in. Out of the blue for the FIRST time EVER she looked at me and said " mommy those are a lot of medicines I have to do". It BROKE my heart.. She can tell you how many pills she needs and what medicines she takes and you would think she would have said something before. This is all NORMAL to her and yes US but it's NOT FAIR!!!!!!
I have done a lot of worrying lately about next year when she is in school all day. I know she knows the do's and don'ts but they are closing so many elementary schools closing so there will be more at her school and my biggest fear is someone else having CF and the parents not telling the school and or for some reason them getting in the same class. I honestly don't know how many school ages kids in our area have CF. I think I am going to go talk to the nurse this week or when I have to sign the girls up for school and see. I know she can't give names but I am hoping she can tell me if there is anyone else in that school with CF.
Sorry for going on and on. That's all I really have to say
