10-27-10 Clinic Update

Miss.Courtney has her clinic appointment today and Eric the wonderful hubby/daddy took her today. Before I update lets just say that I love that he will take her but I had a hard time today I had to text him to get a update so needless to say I had a hard time not being there.

Courtney now weighs 44.2 last time she weighed 42.6 so that is awesome, her height is 45 inches tall can't recall what it was last time but to me that child has not grown much at all. Heart Rate 116 O2 was 98% and temperature was 99.5. Yes I did send a list of questions with Eric but I didn't think he would have wrote down her heart rate so I give him credit for doing that. She got her flue shot and didn't cry they also drew blood and again she didn't cry. Now only if she would let them do throat cultures with out throwing a huge fit. She also got blooded drawn for PT, PTT and INR so I guess one of those are vitamin K levels? She gets bloody noses a lot and sometimes it takes them forever to stop. Last time we were at clinic there was talk about her sinuses. So I guess if the blood work comes back normal we will have to go see a ENT.. Eric also let the doctor know that Courtney had blood work done and blood cultures done due to having fevers off and on for 3-4 weeks she wasn't concerned or worried about the low grade temps at all.


Here is a list of questions that I sent with him and the answers I got back. 

Whats the difference between the Pari LC plus and the Pari LC sprint?- I wanted to know because I wanted to try to Pari LC sprints. Well, no such luck we have to stay with the Pari LC Plus because their is no studies on the Sprints.

Scandishakes- Courtney doesn't care for them any more so I was worried about that. We are now adding half & half in her milk.


And I knew what Courtney's CF mutations were I just wanted to made sure and they are both Delta F508. 


We go back in 6 weeks so that makes December 7th. If Courtney can keep up with what she is doing I think we can avoid club med this winter so I am keeping my fingers crossed and praying..  Courtney was up at 5:00 A.M. to get a hour of treatment before clinic and she didn't take a nap so she was out like a light. I give that child lots of kuddos she is up at 6:00 A.M. Monday-Friday for treatments.. She gets to sleep in on Saturday and do treatments after breakfast and on Sunday's treatment is usually done after church but I think I am going to change that she can get up at 7:00 A.M.

DVR

OK I know this is suppose to be about Courtney but I just got done reading Ronnies Blog over at  www.runsickboyrun.com and it gave me a good idea for a blog what you will find on are DVR 

*1. One Tree Hill- Eric will even watch this with me

*2. The Secret Life Of The American Teenager- Eric will watch this sometimes with me

*3. Criminal Minds

*4. NCIS

5. Hoarders

*6. Teen Mom / 16 And Pregnant - Can't wait for this one to start again

*7. House

8. Paranormal State

9.Keeping Up With The Kardashians 

*10. In Plain Sight - Can't wait for this one to come back on

11. Intervention

12. Sister Wives

13. Reba - DeziRae like's Reba

14. Hannah Montana - Both Girls love this show and it gives me something to watch with them

 15. Ghost Hunters -

16. Dog The Bounty Hunter

17. Little People Big World

As you can see most of these shows are Eric's and mine the girls really don't have recorded shows they will record some shows but that's only if they won't be home or will be in bed..

I love having DVR since we have had it I don't like watching live T.V. and if I do I will pause it for awhile because I don't like commercials. Almost all the shows that I have recording are all new episodes...  

wordless wednesday

Flash me Friday late

Well, I had taken pictures on Friday with my phone and emailed them to my self and then deleted them from my phone bad idea. Some how they didn't come through on my email so I had to redo everything.

If you would like to join Flash me Friday all you need to do it hop on over to http://groettumfamily.blogspot.com

Courtney would eat these all day if I would let her. Mama's gotta have her coffee

We always have to have some type of cheese on hand.

I gotta have my creamer, Courtney will use ranch or sour cream to dip chips in or her meats

Gotta have that Mac and Cheese I could go with out it.

Fruit, gotta have it for lunches and snacks, Fig bars are my new things and PB crackers you would think Courtney wouldn't like applesauce anymore but she still loves it

Green beans, Peas (yucky) Courtney can eat a whole can... And pickled beats and the one missing is Corn