Just a little bit of everyrthing update

Good morning everyone... Last night a CF friend on face booked informed many of us that there was a person faking that her daughter had CF and had even stole some pictures from this friend. How could some one do that.. Come on I don't wish CF up on any one. It just really upsets me and come on especially after the Jones Family loosing their son Conner. This person needs help and if she really does have a daughter I feel so sorry for daughter.

On another note Courtney has been having a good summer she will now go in her grandma and poppop's pool and ours with out her water wings, she now jumps of the ladder in to the water. Courtney just seems to keep amazing me on things. There are days that she fights me with treatment and I can't blame here who would want to come in side for a hour to do treatment so we have been trying to get it done before she can go outside and play and then she does her last one when it's time to come in for the night. The warm weather has kinda messed with her eating she seems not to be too hungry so we just keep fruit in the fridge for her to eat..

DeziRae is no longer in a booster seat so Courtney thinks she doesn't have to be in one .. Both girls will start soccer at the end of July. I am real curious to see how she does with that. I would like her to have a sport to play since it's good for her I just have a feeling come middle school she will want to be a cheer leader nothing wrong with that... Both girls have decided to add hip hop dance in with there tap and ballet so lets see how we all are going to handle Saturday soccer games and hip hop.

Courtney used to be on Nexium until the wonderful insurance company wanted to be a butt and make her have to try Omeprazole generic for Prilosec and honestly I think she has had more tummy problems with that med so I will talk to her dr and see.


Love,
The Catron Family

A Hero in my eyes

Late last night 7 year old Conner Reed Jones earned his angel wings. Conner is a hero in my eyes. Every picture that Sarah and Brad posted of Conner rather it be when he was in club med or home or any where he always had a smile on his face. I didn't know the Jones family only through face book and http://notsobrightandshiny.blogspot.com but the more I read the more they came like family to me. All my CF friends are my family to me my CF family. My heart is breaking I have shed so many tears today but I know Conner man is breathing easy and is up in heaven playing and running around. All I ask is that you keep this family in your thoughts and prayers as they go through all of this.

It's not fair he was only 7 yrs old. Why did god want him back already? That I don't think we will ever know. All I can think was it was to teach all of us something.


CONNER YOU ARE A CF HERO IN MY EYES AND WILL BE GREATLY MISSED!!!!!!

Ballet

Well, it's going to be a busy week with Courtney and DeziRae having dance recital but well worth it. Today Courtney had pictures and oh my goodness she looked so cute. I am not liking my little baby with make up on though. I am hoping to have more pictures of her up by Sunday. She has been doing good. Sorry not much to report on the home front.

Courtney and the Dentist

Well the girls had a dentist apt today. My oldest DeziRae goes in there like a champ Courtney on the other hand doesn't so much.

She just started laying in the chair and let them clean her teeth with out freaking out took about 2 years so 4 visits. Today they wanted to try and get x-rays since she has never had them done well needless to say is that sat in the chair but wouldn't let them do x-rays she wouldn't opened her mouth. Later she told me it was because it would hurt. I told her it wouldn't . Times this like I HATE CF it has made her brave and strong but other times so freaked out thanks to throat cultures. I keep telling my self baby steps she did fine with blood draws at clinic so maybe in 6 months she will let them get x-rays of her teeth.

clinic

Wow it's been a long day.... Courtney had her CF clinic today plus the whole nine yards that go with it. Anyone that knows Courtney knows that she fights with everything blood draws throat cultures...

...................BIG NEWS............

She has being telling me that she was going to be a BIG girls at the doctors. When they came in to do blood draws she said she was going to sit there and I was thinking yea right well she sat there and I didn't hear any screaming or crying so I thought the didn't start yet until Eric looked at me and told me the needle was in. YES I am a proud mama she sat there and didn't flinch nor say a word about blood draws so she got $1.00 for that yes I told her the other day if she didn't throw a fit I would give it to her. Well then came throat culture she threw a fit but that's OK wasn't as bad as other times. We will keep working on that one. I will take 1 of 2....

Well, Courtney has grown a little bit but has lost almost a pound. Her height is 112 cm and weight is 41 lbs. She sounds clear just has some drainage so if she doesn't sound better by Friday I am to call them and then most likely they will call in a antibiotic. Had two x-rays done one for the chest the other for her tummy as she goes poops 2-3 times a day she is real gassy and can run you out of a room. So her Miralax is 1 capful daily. We also have to work on her sleeping issues this shall be fun.


She also has two loose teeth well on the way home she finally pulled it.

Thank Goodness it's Friday

Thank goodness it's Friday.... Don't get me wrong I love the weekend but more than anything I am happy it's Friday because that means it's almost time for clinic. I don't usually get so happy about going to them but my last post stated that Courtney was getting the sniffles well guess what it has turned into a cough with a runny nose. Again I would love to say it's allergies and I am hoping that I am right. We have a busy week ahead of us. I leave next Sunday morning to go to Arizona with my mom and dad for my nephews graduation. The girls will be home with Eric and I know he is able to care for them but I am the mommy that doesn't like to leave her children and am the kind of mommy that has to be in CONTROL all the time. I have faith that almost everything will get done and I know that it's not always going to be done my way but as long as things get done I should be happy right?

We took this year off from Great Strides I know that's bad of me but it didn't help that we don't have many walkers in our town and that our walk got cancelled because of all this. I feel bad but I have this feeling with taking time off will give me more ENERGY to focus on next years walk.

Mandie ~

Just another day

Well well well, Courtney seems to have the sniffles yet again I am thinking some of it's allergies since she isn't coughing let's keep those fingers crossed. Courtney has her birthday check up , really why do they call it that? I call it her yearly CF appointment next Wednesday so lets hope all is well then. I have tons of questions this time around I want to know what her vest settings should be set at these days since she doesn't cough at all during her treatments unless she is sick. I mean her base line is no cough but then again that changes too.


Tonight as she was getting ready to do treatment I was getting everything ready and I was going over what she had to do and when like I always do even though she knows what order they go in. Out of the blue for the FIRST time EVER she looked at me and said " mommy those are a lot of medicines I have to do". It BROKE my heart.. She can tell you how many pills she needs and what medicines she takes and you would think she would have said something before. This is all NORMAL to her and yes US but it's NOT FAIR!!!!!!


I have done a lot of worrying lately about next year when she is in school all day. I know she knows the do's and don'ts but they are closing so many elementary schools closing so there will be more at her school and my biggest fear is someone else having CF and the parents not telling the school and or for some reason them getting in the same class. I honestly don't know how many school ages kids in our area have CF. I think I am going to go talk to the nurse this week or when I have to sign the girls up for school and see. I know she can't give names but I am hoping she can tell me if there is anyone else in that school with CF.

Sorry for going on and on. That's all I really have to say